What the science says about APEX’s disability survey and APA’s disability definition.
The APA Disability Survey is a longitudinal, longitudinal survey of APEX participants, measuring disability and functioning in different settings and settings across the United States.
It measures participants’ disability in five areas: speech, hearing, vision, mobility, and social, as well as their impairment in cognitive abilities.
The disability data from the APAPEX disability survey is a compilation of the responses of people who participated in APEX, APAS Disability Data Collection (APDSC), and the Autism and Developmental Disabilities Monitoring Network (ADDMN) as part of the APEx project, which is managed by the APDMA.
These data are used to compile a detailed disability profile, which can be used to predict the impact of specific disability settings on participants’ daily functioning.
The findings from the disability survey were published online by the Journal of the American Medical Association (JAMA).
The APAPex Disability Survey was the first longitudinal, multi-institutional, multi‐country study to collect disability data, which has long been a goal of the Autism Speaks (AS) community.
APAPEx was a collaborative project of the Center for Health and Wellbeing (CHW) at the University of Pennsylvania, University of South Carolina, University at Buffalo, and the National Institutes of Health (NIH) in partnership with the Autism Spectrum Disorders Society (ASDS).
The disability surveys were conducted from July 2017 through May 2018.
Data collection and analysis was carried out at the Center on Aging and Disability at the National Institute on Aging (NIA) in Bethesda, Maryland, and at the Boston Children’s Hospital, and supported by the National Center for Research Resources of the National Science Foundation (NSF) and the Office of the Vice President for Science.
The authors thank Dr. Steven Karp for his helpful comments on an earlier draft of this manuscript.
The results were adapted from the authors’ analysis of disability data for the APAS, APDSC, and ADDMN disability surveys.
The study was supported by NIH Grants DEB‐002211 and DEB-080837 and the University at Albany Medical Center, which funded research to conduct the disability surveys, and by a grant from the National Humanities Research Council.
Additional support for the research was provided by the U.S. Department of Defense Medical Research Institute of Infectious Diseases.